Patient voice — method and ethics

Last curated: 2026-08-30

This layer synthesizes public, aggregate evidence about living with T1D. Sources include peer-reviewed qualitative/systematic studies and public organization pages fetched during this build.

Method

1. Prefer systematic or mixed-studies syntheses for recurring themes.
2. Require at least two sources for each theme.
3. Use organization materials to identify services and advocacy priorities, not prevalence.
4. Paraphrase; do not reproduce personal narratives.
5. Record access dates and coverage limits.

Ethics

• Public sources only.
• No names or identifying details of private individuals.
• Quotes, if ever used, are limited to 15 words and attributed; none are used in this build.
• Themes are aggregate and are not presented as universal.
• Advocacy priorities are distinguished from representative patient-preference research.