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Patient-voice sources

Last curated: 2026-08-31 (independent audit). The inventory distinguishes qualitative evidence, patient-reported outcome research, service/access evidence and organization material. Audit result: every PMID listed here was re-fetched from PubMed on 2026-08-31 and matched its cited title, journal and year; all eight organisation URLs were re-requested and returned HTTP 200. Five sources were added at audit (Riley 2001, Arazi 2026, Nguyen 2023, Cao 2025, Grimfors 2022) and no listed source was found to be misattributed.

Qualitative and decision-making research

  • Webber KJ, et al. Experiences following cataract surgery — patient perspectives. Ophthalmic Physiol Opt. 2020;40:540–548. PMID 32654259 — postoperative experience; directly relevant qualitative source.
  • Sampietro-Colom L, et al. Citizens' opinions, experiences and perceptions about waiting lists for elective cataract surgery and hip/knee replacement. Aten Primaria. 2004;33:86–94. PMID 14967125 — four cataract focus groups; waiting, prioritisation and communication.
  • Risk communication in cataract surgery. PMID 38729627 — communication and decision framing; useful for expectation-setting, not frequency estimates.
  • Decision-making for cataract surgery: changes within 7 years. PMID 30284377 — longitudinal change in surgical decision-making context.
  • Patient perspective on the participation of ophthalmology residents in their cataract surgery. PMID 35623411 — consent and training participation.

Patient-reported outcome and function research

  • Qin VL, et al. Measuring outcomes in cataract surgery. Curr Opin Ophthalmol. 2018;29:100–104. PMID 28937505 — maps acuity, refraction, contrast, reading, patient-reported function and complications.
  • Kabanovski A, et al. Validation and application of Catquest-9SF in various populations: a systematic review. PMID 31862206 — cross-population PROM evidence.
  • Visual acuity, patient-reported outcome measures, or both? Development of an evidence-based appropriateness and prioritization tool. PMID 36028007 — combines clinical and patient-reported selection information.
  • Assi L, et al. A Global Assessment of Eye Health and Quality of Life: A Systematic Review of Systematic Reviews. JAMA Ophthalmol. 2021;139:526–541. PMID 33576772 — broad eye-health quality-of-life context; not cataract-specific throughout.
  • Keay L, et al. The incidence of falls after first and second eye cataract surgery: a longitudinal cohort study. Med J Aust. 2022;217:94–99. PMID 35702892 — person-level downstream function and sequencing.

Access, service and equity sources

  • Brown MM. Do waiting times really matter? Br J Ophthalmol. 2007;91:270–271. PMID 17322459 — interpretive source on waiting; not qualitative primary research (the indexed record consists of a single summary sentence).
  • Riley AF, et al. The waiting game: natural history of a cataract waiting list in New Zealand. Clin Exp Ophthalmol. 2001;29:376–380. PMID 11778807 — outcome of a rationed reserve list: mean wait 18.2 ± 11.6 months, 49% eventually operated publicly, 12% died, acuity down 0.05 logMAR.
  • Arazi M, et al. Implementing effective cataract surgical coverage: a comparative qualitative study in Kenya and Nepal. BMJ Glob Health. 2026;11. PMID 41735007 — 20 senior-stakeholder interviews on how eCSC is actually implemented.
  • Nguyen H, et al. Associations between vision impairment and vision-related interventions on crash risk and driving cessation: systematic review and meta-analysis. BMJ Open. 2023;13:e065210. PMID 37567751 — 101 studies, 778,052 participants.
  • Cao J, et al. Quality of cataract-related videos on TikTok and its influencing factors: A cross-sectional study. Digit Health. 2025;11:20552076251365086. PMID 40755956 — public information quality scored on four validated instruments.
  • Gupta S, et al. Effective cataract surgical coverage in India: Evidence from 31 districts. PMID 38622863 — coverage inequality and education gradient.
  • Access to cataract surgical services: international ophthalmology accepts the challenge. PMID 21616210 — global service framing.
  • Cataract Surgery Quality and Capacity. PMID 31244461 — links expansion to quality.
  • Improving cataract services: better access, better outcomes, better value. PMID 36704526 — service-design framing.
  • Harwood RH, Foss AJ. Second-eye cataract surgery: valuable investment or unaffordable luxury? Age Ageing. 2014;43:310–312. PMID 24727318 — second-eye value and access.

Symptom and residual-outcome sources

  • Hu J, et al. Dysphotopsia: a multifaceted optic phenomenon. Curr Opin Ophthalmol. 2018;29:61–68. PMID 29084005 — residual photic phenomena after IOL implantation.
  • Pusnik A, et al. Dysphotopsias or Unwanted Visual Phenomena after Cataract Surgery. Life (Basel). 2022;13. PMID 36676002 — quantifies early and persistent positive and negative dysphotopsia.
  • Grimfors M, et al. Self-assessed visual function outcome in cataract surgery: minimum important difference of the Catquest-9SF questionnaire. Eye Vis (Lond). 2022;9:46. PMID 36494767 — the change a patient notices depends on their baseline function.
  • Webber et al. (PMID 32654259) — postoperative benefits and negative experiences in the same qualitative frame.

Public organization sources

  • RNIB — cataract information and support: https://www.rnib.org.uk/your-eyes/eye-conditions-az/cataracts/ (accessed 2026-08-31; HTTP 200).
  • Sightsavers — cataract public/service information: https://www.sightsavers.org/protecting-sight/cataracts/ (accessed 2026-08-31; HTTP 200).
  • IAPB Vision Atlas — cataract cause page: https://www.iapb.org/learn/vision-atlas/causes-of-vision-loss/cataract/ (accessed 2026-08-31; HTTP 200).
  • American Academy of Ophthalmology EyeSmart — cataract education: https://www.aao.org/eye-health/diseases/what-are-cataracts (accessed 2026-08-31; HTTP 200).
  • The Fred Hollows Foundation: https://www.hollows.org/ (accessed 2026-08-31; HTTP 200).
  • CBM Global: https://www.cbm.org/ (accessed 2026-08-31; HTTP 200).
  • Vision Australia: https://www.visionaustralia.org/ (accessed 2026-08-31; HTTP 200).
  • IAPB: https://www.iapb.org/ (accessed 2026-08-31; HTTP 200).

Coverage limits

  • The live search located far fewer cataract-specific qualitative studies than surgical or device studies.
  • English-language and organization-produced web material is overrepresented.
  • Postoperative samples underrepresent people never offered surgery, those declining it, and those lost to follow-up.
  • No prevalence claim is made from a patient story or organization page.
  • The synthesis excludes private posts, closed groups and identifying accounts.