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Annotated patient-voice sources¶
Last checked: 2026-10-22 (new public event/resource listings; earlier source dates retained)
Peer-reviewed qualitative and mixed-methods sources¶
| Source | Population / design | Contribution | Limit |
|---|---|---|---|
| Hurley et al. 2018, PMID 29664187 | Mixed-methods review, hip/knee OA exercise beliefs | Connects beliefs about pain, damage and exercise to intervention experience | Heterogeneous interventions and samples |
| Reischl et al. 2024, PMID 39073278 | Interpretive description, knee-OA stiffness | Expands stiffness beyond a morning-duration item | Qualitative; no prevalence inference |
| Teo et al. 2021, PMID 34006028 | Australian physiotherapy experience | Therapeutic relationship, explanation and program delivery | One national service context |
| Thom et al. 2023, PMID 37434180 | Australian private-physiotherapy interviews | Care-pathway and expectation experience | Private-care selection |
| Panter et al. 2021, PMID 33537932 | Erosive and non-erosive hand OA | Dexterity, appearance and hand-specific burden | Hand OA only |
| Alyousef et al. 2024, PMID 37995059 | Working with lower-limb OA | Employment demands and adaptations | Workers able/willing to participate |
| Agaliotis et al. 2018, PMID 30373994 | Chronic knee pain and work | Meaning of work limitation and disclosure | Chronic knee pain construct not identical to OA in every participant |
| King et al. 2024, PMID 38229918 | Recalled first knee-OA symptoms | Attribution and delay | Recall bias |
| O'Brien et al. 2023, PMID 36214055 | Aboriginal and Torres Strait Islander OA burden | Structural and cultural access context | Review cannot substitute for community-specific primary work |
| O'Brien et al. 2019, PMID 31551388 | Decision to progress to knee replacement | Thresholds, expectations and uncertainty | Surgery-eligible sample |
| Caesar et al. 2022, PMID 33988862 | Cancelled hip/knee replacement | Lived effect of cancellation and perceived rejection | System-specific cancellation context |
| Maillette et al. 2017, PMID 28347691 | Return to work after TKA | Work negotiation after replacement | Postoperative workers only |
| Taylor et al. 2022, PMID 35558092 | Systematic review/meta-synthesis after knee replacement | Persistent pain and function from patient perspective | Primary studies vary in timing and methods |
| Te Molder et al. 2024, PMID 38152392 | Patients and knee specialists on adverse TKA consequences | Reveals interpretation gaps | Qualitative, not complication incidence |
| Yang et al. 2023, PMID 36580492 | Asian knee-OA psychosocial factors | Family, emotion and cultural context | One regional/cultural setting |
| Isla Pera et al. 2016, PMID 27313449 | Older adults with obesity, knee OA and multimorbidity | Weight-loss facilitators and barriers | Small complex population |
| Stamm et al. 2014, PMID 23362188 | Six rheumatic conditions, eight European countries | Shared activity problems but condition-specific meanings | Cross-condition synthesis |
Preference and decision-quality sources¶
| Source | Design | Contribution | Limit |
|---|---|---|---|
| Al-Omari et al. 2020, PMID 33376311 | Adaptive choice-based conjoint analysis | Quantifies medication-attribute trade-offs | Hypothetical choices can differ from use |
| Bozic et al. 2012, PMID 21955791 | Preferences / willingness to pay for hip arthroplasty | Shows heterogeneity in value placed on surgery | Payment framing is health-system sensitive |
| Jayakumar et al. 2021, PMID 33599773 | Randomized AI-enabled decision aid | Decision quality, shared decision-making and experience | Technology and setting affect transfer |
| Rivero-Santana et al. 2021, PMID 34174455 | Randomized knee-OA decision aid | Tests informed-decision process | Does not establish a preferred treatment |
| Bansback et al. 2022, PMID 36474942 | Routine-care randomized online decision aid | Individualized support before TKA | Digital access and literacy matter |
Public organization sources¶
- Arthritis Foundation — OA hub. Whole-joint framing, living-well resources, helpline and research/advocacy links. Official page, accessed 2026-08-30.
- Arthritis UK — OA guide and helpline. Daily life, work, emotional support and benefits navigation in a UK context. OA guide, accessed 2026-08-30.
- Arthritis Australia — OA page. Public booklets, MyOA/MyJointPain and state/territory support routes. Official page, accessed 2026-08-30.
- Arthritis Society Canada — resources. OA patient journey, Arthritis Line, peer listeners, bilingual service and trackers. Official resource hub, accessed 2026-08-30.
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Arthritis UK Scotland — MSK Action Plan open letter (dated 2026-09-01). Advocacy campaign asking the Scottish First Minister to commit to a musculoskeletal action plan; states 1.7 million people in Scotland live with an MSK condition and that arthritis has no national strategy there. All-arthritis framing, not OA-specific; campaigners named on the page are not recorded here. News page (Arthritis UK — "First Minister: Don't turn your back on arthritis", accessed 2026-10-15).
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Arthritis Foundation — “OA Basics & First Steps Forward.” Public education webinar listed for 29 October 2026, 7:00–8:15 p.m. ET; covers newly diagnosed OA, daily function and support resources. Scheduled material only: attendance, delivery and benefit are not established. Upcoming webinars, accessed 2026-10-22.
- OAFI — 10th International Patient Congress. Public patient-organisation event scheduled for 28–29 October 2026 in Barcelona, with conferences and practical workshops on OA and joint health. Event listing, not representative patient testimony or clinical evidence. Official event page, accessed 2026-10-22.
Coverage limits¶
- Knee OA and arthroplasty dominate; hip, hand, foot, shoulder, spine and multi-joint experience are underrepresented.
- English-language and high-income-country services dominate.
- People outside care, unable to exercise, denied surgery, with low digital access, or facing transport and cost barriers are less visible.
- Working-age samples capture employment but may exclude people already pushed out of work.
- Organization material reflects service priorities and editorial choices, not population-representative testimony.
- Searches did not use private social-media groups or closed patient communities for ethical and reproducibility reasons.