Patient and advocacy organizations¶
All sites below were fetched or search-result verified from the organization's official domain on 2026-08-30.
| Organization | Region | Verified role/resources | Official URL | Accessed |
|---|---|---|---|---|
| Global Heart Hub | Global | Umbrella alliance of heart-patient organizations; policy and patient-voice coordination | https://globalhearthub.org/ | 2026-08-30 |
| World Heart Federation | Global | Global CVD advocacy, prevention and policy campaigns | https://world-heart-federation.org/ | 2026-08-30 |
| Mended Hearts | US with broader reach | Peer support, chapters, hospital visiting, education and advocacy | https://mendedhearts.org/about-us/ | 2026-08-30 |
| WomenHeart | US | Patient-centered support and advocacy for women with or at risk of heart disease | https://www.womenheart.org/ | 2026-08-30 |
| INOCA International | International/UK-based | Patient information, stories, expert resources, research and clinician directory for INOCA | https://inocainternational.com/patients/ | 2026-08-30 |
| British Heart Foundation | UK | Nurse helpline, information, practical/emotional support, online community and home CR | https://www.bhf.org.uk/informationsupport/support | 2026-08-30 |
| Heart & Stroke Foundation | Canada | Recovery education, online survivor community, relationships/emotions and CR resources | https://www.heartandstroke.ca/heart-disease/recovery-and-support | 2026-08-30 |
| Heart Foundation | Australia | MyHeart MyLife, recovery information, online community and CR directory | https://www.heartfoundation.org.au/your-heart/support/heart-attack-recovery-next-steps | 2026-08-30 |
| Heart & Stroke Foundation South Africa | South Africa | Public education, support directory and national awareness | https://www.heartfoundation.co.za/ | 2026-08-30 |
Selection notes¶
- Inclusion requires an official public website and clear patient support, education, representation, or advocacy function.
- Professional societies without a patient-facing support role are catalogued in the guideline registry instead.
- Listing is descriptive, not endorsement or quality accreditation.
- Commercially operated communities and closed social-media groups were excluded because governance, privacy, and permanence could not be assessed adequately.
Geographic gaps¶
No organization was added from a search snippet alone when official governance and patient-facing function could not be confirmed. A future sweep should prioritize Spanish/Portuguese-speaking Latin America, India, Japan, mainland China, the Middle East, and additional African countries.