Skip to content

Not yet independently audited

This page was written from verified sources but has not yet passed the independent citation audit. Treat its claims as provisional.

Annotated patient-voice sources

Last curated: 2026-10-27

Peer-reviewed

  • Woo S, et al. Development and preliminary psychometric evaluation of the COPD-related Stigma Scale. Heart Lung. 2023. PMID 37084465 — early measurement study; requires broader validation.
  • Farquhar M, et al. Carers and breathlessness. Curr Opin Support Palliat Care. 2017. PMID 28617682 — review centered on caregiver experience and support.
  • Maddocks M, et al. Palliative care and management of troublesome symptoms in COPD. Lancet. 2017. PMID 28872031 — symptom and palliative-care synthesis.
  • Afroz N, et al. Patient-reported outcomes in COPD clinical trials. Int J Chron Obstruct Pulmon Dis. 2020. PMID 32801678 — documents outcome-selection gaps.
  • Taichman DB, et al. Making long-term oxygen therapy less burdensome. N Engl J Med. 2024. PMID 39254439 — editorial framing of device/service burden.

Public organizational sources

  • COPD Foundation — education/support framework and support contacts. https://www.copdfoundation.org/ — accessed 2026-08-30. US-based, broad online reach; curated advocacy content.
  • European Lung Foundation — patient-led multilingual information and partnership. https://europeanlung.org/en/ — indexed live metadata checked 2026-08-30 after direct retrieval returned HTTP 403. Pan-European, not COPD-only.
  • Lung Foundation Australia — helpline, support, stories, research and advocacy. https://lungfoundation.com.au/ — accessed 2026-08-30. National organization; public stories are selected, not sampled.
  • Canadian Lung Association — COPD resources, action plan, inhaler education and BreatheSTRONG. https://www.lung.ca/lung-diseases/copd/ — accessed 2026-08-30. Notes educational sponsorship on COPD pages.

2026 awareness material verified 2026-10-27

  • COPD Foundation — “COPD Awareness Month,” https://www.copdfoundation.org/Take-Action/Get-Involved/COPD-Awareness-Month.aspx, accessed 2026-10-27. Its November 2026 campaign uses orange to emphasize awareness, access and advocacy, offers a public digital toolkit, and lists a patient/community webinar for 17 November. These are announced activities; participation or benefit has not been established.
  • GOLD — “World COPD Day 2026,” https://goldcopd.org/world-copd-day-2026/, accessed 2026-10-27. World COPD Day is announced for 18 November under the theme “Early Diagnosis and Management for a Better Life,” with campaign graphics and a virtual baton-pass event. This records public advocacy material, not evidence that population screening or the campaign improves outcomes.
  • Schmidt-Stiedenroth K, et al. Needs among persons with advanced COPD and their informal caregivers: a multi-perspective qualitative study focusing on the potential role of palliative care. BMC Pulm Med. 2026. PMID 42897575 — full text read; German multi-perspective needs study, with physician-mediated recruitment and limited cross-system transferability. Themes are reported in aggregate; no participant names or individual stories retained.

Coverage limits

No private-person content was collected. Current coverage lacks direct sources in most of Africa, Asia, Latin America and the Middle East; non-English patient organizations; occupational groups; Indigenous-led COPD sources; and offline communities. Future expansion should prioritize locally governed qualitative research rather than translating high-income-country themes without validation.