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Annotated sources — patient voice layer (session 2026-08-28)

Every entry below was verified during the writing session: web pages by direct fetch, videos by inspection of search-result listings (title/channel/description), papers by live PubMed query. Names of private individuals appearing in publishers' own page/video titles are elided as "[name]" per this layer's ethics rules; URLs preserve verifiability. Access date for all web items: 2026-08-28.

(a) Organization pages (fetched)

Source URL What it covers
National Fibromyalgia Association — homepage https://www.fmaware.org/ Mission, founding (1997, Lynne Matallana), >250k members, "Not Forgotten" patient-story videos, Chronic Pain Reset podcasts, research facilitation, resource directory.
National Fibromyalgia Association — "History of Fibromyalgia Awareness Day by the NFA" https://www.fmaware.org/fibromyalgia-awareness-day-history/ Awareness Day started by NFA 1998; 10-year lawmaker proclamation program; 2006 Pledge to Care; 2008 Lights of Hope; Walk of FAME; "Know Fibro" tour; social-media-era campaigns.
Fibromyalgia National Health Organization — homepage https://fibromyalgianational.org/ Successor identity of Support Fibromyalgia Network (shared Tax ID 81-4591862); mission, group medical visits, provider education, research news curation.
Charity Navigator — Fibromyalgia Care Society of America Inc. https://www.charitynavigator.org/ein/473585746 Authoritative profile used because fibro.org rendered as an empty placeholder: EIN, Newark NJ address, mission (education, care, supportive services, provider education), Not-Rated status for lack of public financials.
Fibromyalgia Action UK — homepage https://www.fmauk.org/ Charity numbers, two national helplines incl. dedicated Benefits Helpline, regional groups, medical education packs, Medical Advisory Board, APPG work, May 12 observance, Tonmya (FDA approval) coverage.
UK Fibromyalgia — homepage https://www.ukfibromyalgia.com/ 20+ year monthly magazine; support-group and doctor directories; 107k+ Facebook followers, 28k+ private group (not accessed); commercial partnerships.
ENFA — homepage https://enfa-europe.eu/ Pan-European umbrella since ≈2008; European Parliament round tables; management e-book; webinars; burden framing.
ENFA — "Members" https://www.enfa-europe.eu/members/ Roster of ~21 national member organizations across 15+ countries (list reproduced in organizations.md).
Deutsche Fibromyalgie-Vereinigung e.V. — homepage https://www.fibromyalgie-fms.de/ German federal self-help association; regional coordinators; telephone counseling; Optimisten magazine; scientific advisory team.
Fibromyalgiförbundet — homepage https://www.fibromyalgi.se/ Swedish national association; 27 local associations; FibromyalgiNytt; own research-grant foundation; May 12 events; Almedalen panels.
Norges Fibromyalgi Forbund — homepage https://fibromyalgi.no/ Norwegian association; peer-counselor service; research fund; May 12 coordination.
National ME/FM Action Network — homepage https://www.mefmaction.com/ Canadian ME+FM charity since 1993 (Lydia Neilson); Canadian Consensus Criteria; CPP Disability Guide; research registry; scholarships.
Fibromyalgia Australia — homepage https://www.fibromyalgiaaustralia.org.au/ Bridges & Pathways Institute Inc.; SA ME/CFS/FMS Clinical Research Collaboration lineage; clinician + patient resources; Medicare/Centrelink/NDIS navigation.
Chronic Pain Ireland — homepage https://www.chronicpain.ie/ National chronic-pain charity (FM within chronic-pain remit); support line; self-management workshops; PRIME study with University of Galway.
Healthify He Puna Waiora (NZ health portal) — "Fibromyalgia support" https://healthify.nz/support/f/fibromyalgia-support NZ support landscape: Complex Chronic Illness Support; Arthritis NZ; Arthritis-NZ-associated Facebook group.
Wikipedia — "International May 12th Awareness Day" https://en.wikipedia.org/wiki/International_May_12th_Awareness_Day Started by Tom Hennessy, first observed 1993; covers ME/CFS, FM, MCS, GWS; observance conventions (purple for FM, landmark lightings, #MillionsMissing adjacency).

(b) News / feature articles (fetched)

Source URL What it covers
Global News — "Lady Gaga on her fight with fibromyalgia" https://globalnews.ca/news/4438236/what-is-fibromyalgia-lady-gaga/ Public figure (Lady Gaga): disbelief frustration ("I get so irritated with people who don't believe fibromyalgia is real"), trauma/nervous-system framing, expert commentary (Fitzcharles, McGill) on recognition, 5-year diagnostic delays, female predominance, lifestyle-first management.
Stylist — "Desert Island Discs: Kirsty Young steps down as host" https://www.stylist.co.uk/people/kirsty-young-desert-island-discs-leaving-illness-fibromyalgia-2018/224455 Public figure (Kirsty Young): 2018 hiatus then 2019 permanent departure from BBC R4 flagship due to FM; her framing of illness-forced perspective change; article links her condition to Lady Gaga's for public recognition.

Search-listed but not fetched (do not cite for content): CBC Radio first-person feature on family disbelief (HTTP 403); News24/City Press South Africa, "I'm not lazy; I'm in pain" (HTTP 403); BBC Morning Live FM feature (seen only via a clinic's summary page). Listed here so future sessions can re-attempt.

(c) Video content (verified from search listings only — see coverage limits)

Identified via site:youtube.com searches ("fibromyalgia my story / living with fibromyalgia", "fibromyalgia patient story" + hospital names, "fibromyalgia awareness day May 12"). Cited from listing data (title, channel/description where shown); videos were not played and transcripts were not retrieved.

Video (title as listed; private names elided) Channel / publisher (per listing) URL What the listing shows
"Fibromyalgia: [name]'s story" NHS https://www.youtube.com/watch?v=dyGMdwgfwWo UK health-service patient story: how FM affected one patient and how it can be treated — institutional patient-voice format.
"Living with fibromyalgia" (channel unclear in listing; three first names in description) https://www.youtube.com/watch?v=Pmc_03THh7Q Three people share personal FM experiences — multi-voice living-with format.
"Fibromyalgia — my story of living with Fibromyalgia" (individual creator) https://www.youtube.com/watch?v=JWcSNntRZ-g First-person account (2024).
"My fibromyalgia story: Part One" (individual creator) https://www.youtube.com/watch?v=u1uMKDAc28k First-person diagnosis-journey narrative (2022).
"10 unexpected struggles of living with Fibromyalgia" (individual creator) https://www.youtube.com/watch?v=YcPLhfXgciA Enumerated daily-life burdens format (2023) — invisibility, fluctuation.
"Living With Fibromyalgia [name]'s Powerful Story of Chronic Pain, Hope & Advocacy" (per listing) https://www.youtube.com/watch?v=tKQx6RFZMZw
"[name]'s Fibromyalgia & Chronic Fatigue FULL Recovery Story (After 24 Years!)" (recovery-story channel) https://www.youtube.com/watch?v=hZlkOSfst1Q Recovery-narrative genre — note contested-recovery-claims caveat below.
"Living Well with Fibromyalgia & ME/CFS – Free Trial + Community (My Story)" (individual creator/course promoter) https://www.youtube.com/watch?v=tEcX6UUDDZU Lived-experience testimony bundled with a paid course/community — exemplar of the FM self-management market.
"Fibromyalgia: Mayo Clinic Radio" Mayo Clinic https://youtube.com/watch?v=MK4YoTAlr7s Institutional clinician-education format (FM & Chronic Fatigue Clinic specialist).
"Mayo Clinic Guide to Fibromyalgia: Strategies to Take Back Your Life" Mayo Clinic https://www.youtube.com/watch?v=rR1VY5jmIMQ Myth-dispelling + self-management strategies — institutional counter-stigma content.
"Proclamation: Fibromyalgia Awareness Day, May 12, 2025" (municipal channel — North Battleford mayor, per listing) https://www.youtube.com/watch?v=pnrdrrwMNwI The NFA-pioneered proclamation format alive at municipal level, 2025.
"Fibromyalgia Awareness Day 2022 Free Webinar" (advocacy webinar, per listing) https://www.youtube.com/watch?v=xi8cM7qTxy8
"Día Mundial de la Fibromialgia 2026 'Nuestra realidad no es invisible'" (Spanish-language, per listing) https://www.youtube.com/watch?v=-riNXvvfzpE 2026 World FM Day slogan — "our reality is not invisible" — invisibility as the campaign axis, in Spanish.

Genre caveats: (1) "Full recovery" testimony videos are a recognizable genre with commercial adjacency (courses, coaching); they are catalogued as patient voice but must not be cited as outcome evidence. (2) FM YouTube/TikTok content is majority patient-generated and scores poorly on standard quality instruments (Ozsoy-Unubol 2020, PMID 33355406; Macedo 2021, PMID 34748454; Canatan 2024, PMID 39156279) — the listing above is a voice sample, not an information source.

(d) Published qualitative / patient-experience research (PubMed-verified this session)

Metasyntheses and reviews of the FM illness experience:

  1. Sim J, Madden S. Illness experience in fibromyalgia syndrome: a metasynthesis of qualitative studies. Soc Sci Med. 2008;67:57-67. PMID 18423826 — the field-defining metasynthesis; legitimacy, uncertainty, coping as cross-study categories.
  2. Mengshoel AM, et al. Diagnostic experience of patients with fibromyalgia — A meta-ethnography. Chronic Illn. 2018;14:194-211. PMID 28762775 — 28 reports; relief-then-limits arc of the FM diagnosis.
  3. Otón T, et al. Patient-journey of fibromyalgia patients: A scoping review. Reumatol Clin (Engl Ed). 2024;20:96-103. PMID 38395498 — journey from first symptoms through follow-up; system-level failure points. Latin-American companion: Otón 2024, PMID 38182526.
  4. Climent-Sanz C, et al. Fibromyalgia pain management effectiveness from the patient perspective: a qualitative evidence synthesis. Disabil Rehabil. 2024;46:4595-4610. PMID 37965900 — medication disillusionment; self-management pivot.
  5. Yung K, et al. Exploring patient activation and self-management experiences in adults with fibromyalgia: a qualitative evidence synthesis. Rheumatol Adv Pract. 2025;9:rkaf025. PMID 40093347 — legitimizing FM, medical/peer support, learning to self-manage.
  6. Climent-Sanz C, et al. Poor Sleep Quality Experience and Self-Management Strategies in Fibromyalgia: A Qualitative Metasynthesis. J Clin Med. 2020;9(12). PMID 33321937.
  7. Fernandez-Araque A, et al. Mishel's Model of Uncertainty… in Fibromyalgia Patients, a Scoping Review. Int J Environ Res Public Health. 2020;17(11). PMID 32466421 — uncertainty architecture of the FM experience.
  8. Dépelteau A, et al. Occupational Adaptation of People Living With Fibromyalgia: A Systematic Review and Thematic Synthesis. Am J Occup Ther. 2021;75(4). PMID 34780617.
  9. Granero-Molina J, et al. Sexuality in Women with Fibromyalgia Syndrome: A Metasynthesis of Qualitative Studies. Healthcare (Basel). 2023;11(20). PMID 37893837.
  10. Byrne A, et al. Patient and primary care practitioners' perspectives on consultations for fibromyalgia: a qualitative evidence synthesis. Prim Health Care Res Dev. 2023;24:e58. PMID 37750736.

Primary qualitative studies — legitimacy, stigma, identity:

  1. Åsbring P, Närvänen AL. Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qual Health Res. 2002;12:148-60. PMID 11837367 — the stigma classic.
  2. Åsbring P. Chronic illness — a disruption in life: identity-transformation among women with chronic fatigue syndrome and fibromyalgia. J Adv Nurs. 2001;34:312-9. PMID 11328436.
  3. Åsbring P, Närvänen AL. Ideal versus reality: physicians perspectives on patients with chronic fatigue syndrome (CFS) and fibromyalgia. Soc Sci Med. 2003;57:711-20. PMID 12821018 — physicians moralizing; sick-role gatekeeping.
  4. Åsbring P, Närvänen AL. Patient power and control: a study of women with uncertain illness trajectories. Qual Health Res. 2004;14:226-40. PMID 14768459 — patient counter-strategies (exit, confrontation, persuasion).
  5. Werner A, Malterud K. It is hard work behaving as a credible patient… Soc Sci Med. 2003;57:1409-19. PMID 12927471 — gendered credibility work.
  6. Undeland M, Malterud K. The fibromyalgia diagnosis: hardly helpful for the patients? A qualitative focus group study. Scand J Prim Health Care. 2007;25:250-5. PMID 18041660.
  7. Boulton T. Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion. Qual Health Res. 2019;29:809-819. PMID 30296924.
  8. Bontempo AC. Ignored, dismissed, and minimized: … A systematic meta-synthesis of qualitative research [on invalidation in health care]. Psychol Bull. 2025;151:399-427. PMID 40310228.
  9. Alameda Cuesta A, et al. Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences. Clin Nurs Res. 2021;30:32-41. PMID 30917692 — subjectivity under contested-illness status.
  10. Groenevelt I. Contesting misrecognition online: Experiences of epistemic in/justice by vloggers with contested illnesses. Soc Sci Med. 2023;327:115951. PMID 37182295.
  11. Manavi D, et al. Fibromyalgia in systemic autoimmune rheumatic diseases: a mixed-methods study of patient and clinician perspectives. Rheumatol Int. 2026;46. PMID 42236570.
  12. Oikkonen V, et al. Entangled Illnesses: Embodied Experiences of Managing Multimorbidity. Sociol Health Illn. 2025;47:e70006. PMID 39874027.
  13. Kranke D, Kranke B. Re-Imagining Fibromyalgia. Soc Work Public Health. 2026;41:297-299. PMID 41554012 — lived-experience commentary; strengths framing (author-disclosed experience; public authorship).

Primary qualitative studies — daily life, coping, family, men:

  1. Raymond MC, Brown JB. Experience of fibromyalgia. Qualitative study. Can Fam Physician. 2000;46:1100-6. PMID 10845136 — early classic.
  2. Taylor AG, et al. Perspectives on Living With Fibromyalgia. Glob Qual Nurs Res. 2016;3. PMID 28620627.
  3. Fitzmaurice BC, et al. The Fibromyalgia Decomposition Phenomenon: A Reflexive Thematic Analysis. Behav Sci (Basel). 2024;14(1). PMID 38247699.
  4. Kengen Traska T, et al. Strategies used for managing symptoms by women with fibromyalgia. J Clin Nurs. 2012;21:626-35. PMID 21323780 — pacing, masks, social support.
  5. Antcliff D, et al. Exploring patients' opinions of activity pacing… Physiotherapy. 2016;102:300-7. PMID 26385155 — boom-bust vs pacing typologies (chronic pain incl. FM/CWP).
  6. Rodham K, et al. A qualitative exploration of carers' and patients' experiences of fibromyalgia. Musculoskeletal Care. 2010;8:68-77. PMID 20229608.
  7. Vázquez Canales LM, et al. Dealing with fibromyalgia in the family context: a qualitative description study. Scand J Prim Health Care. 2024;42:327-337. PMID 38445639.
  8. Kueny A, et al. Fibromyalgia Pain and Fatigue Symptoms in Spanish and U.S. Men. Pain Manag Nurs. 2021;22:423-428. PMID 33771468.
  9. Montesó-Curto P, et al. Physical Activity and Exercise Experience in Spanish and US Men with Fibromyalgia. Int J Environ Res Public Health. 2023;20(18). PMID 37754590.
  10. Ruschak I, et al. Fibromyalgia Syndrome Pain in Men and Women: A Scoping Review. Healthcare (Basel). 2023;11(2). PMID 36673591.
  11. Hamama L, Itzhaki M. Coping with fibromyalgia — a focus group study. Int J Qual Stud Health Well-being. 2023;18:2204622. PMID 37074672.
  12. Costa AJS, et al. The (in)visibility of fibromyalgia through its symptoms… Rev Bras Enferm. 2024;77:e20230363. PMID 38896712 (companion social-representations paper: Costa 2024, PMID 39356924).
  13. Arfuch VM, et al. Patients' Lived Experience in a Multicomponent Intervention for Fibromyalgia Syndrome in Primary Care. Int J Environ Res Public Health. 2022;19(20). PMID 36293900.
  14. Aldarwesh A. Journey of Hope for Patients with Fibromyalgia: From Diagnosis to Self-Management — A Qualitative Study. Healthcare (Basel). 2025;13(2). PMID 39857169.
  15. Mengshoel AM, et al. Enabling personal recovery from fibromyalgia — … a person-centred, recovery-oriented programme. BMC Health Serv Res. 2021;21:339. PMID 33853607.
  16. Pearson J, et al. Fibromyalgia Self-Management: Mapping the behaviour change techniques… Musculoskeletal Care. 2020;18:372-382. PMID 32452615 (community-delivery feasibility RCT with nested qualitative study: Pearson 2022, PMID 35820832; fluctuation-aware intervention design: Courel-Ibáñez 2023, PMID 37451740).
  17. Black S, et al. Investigation of patients' understanding of fibromyalgia: Results from an online qualitative survey. Patient Educ Couns. 2024;122:108156. PMID 38242011.

Patient surveys and patient-derived outcome domains:

  1. Bennett RM, Jones J, Turk DC, Russell IJ, Matallana L. An internet survey of 2,596 people with fibromyalgia. BMC Musculoskelet Disord. 2007;8:27. PMID 17349056 — NFA-built; symptoms, aggravators, management ratings, medication perceptions.
  2. Choy E, et al. A patient survey of the impact of fibromyalgia and the journey to diagnosis. BMC Health Serv Res. 2010;10:102. PMID 20420681 — 2.3 years / 3.7 physicians to diagnosis; 22% unable to work.
  3. Arnold LM, et al. Patient perspectives on the impact of fibromyalgia. Patient Educ Couns. 2008;73:114-20. PMID 18640807 — six focus groups feeding outcome-measure reform.
  4. Mease P, et al. Fibromyalgia syndrome module at OMERACT 9: domain construct. J Rheumatol. 2009;36:2318-29. PMID 19820221 — patient Delphi + clinician consensus core domains.
  5. Choy EH, et al. Content and criterion validity of the preliminary core dataset for clinical trials in fibromyalgia syndrome. J Rheumatol. 2009;36:2330-4. PMID 19820222.
  6. Millar KA, et al. Lived Experiences of Cognitive Dysfunction in Fibromyalgia… J Patient Exp. 2024;11. PMID 38333024 — Facebook peer-group fibrofog analysis.

Work, disability, and welfare legitimacy:

  1. Lev A, et al. Work volition in women with fibromyalgia: a phenomenological analysis. Disabil Rehabil. 2022;44:2267-2275 (epub 2020). PMID 33043704.
  2. Krakov A, et al. The correlation between the ACR questionnaire and fitness for work of fibromyalgia patients. Clin Exp Rheumatol. 2021;39 Suppl 130:61-65. PMID 33886454.
  3. Geiger BB. Disabled but not deserving? The perceived deservingness of disability welfare benefit claimants. J Eur Soc Policy. 2021;31:337-351. PMID 34295021.
  4. Fresk M, et al. Exploring ICF applicability for coding work-related disability… depression and fibromyalgia in Swedish sick leave certificates. J Rehabil Med. 2024;56:jrm36886. PMID 39569419.

Clinician attitudes and the prestige hierarchy:

  1. Album D, Westin S. Do diseases have a prestige hierarchy? A survey among physicians and medical students. Soc Sci Med. 2008;66:182-8 (epub 2007). PMID 17850944.
  2. Album D, et al. Stability and change in disease prestige: … three surveys spanning a quarter of a century. Soc Sci Med. 2017;180:45-51. PMID 28319909 — FM bottom-ranked in 1990, 2002, 2014.
  3. Norredam M, Album D. Prestige and its significance for medical specialties and diseases. Scand J Public Health. 2007;35:655-61. PMID 17852972.
  4. Haldar M, et al. Legitimating the illegitimate: How doctors manage their knowledge of the prestige of diseases. Health (London). 2016;20:559-577. PMID 26245482.
  5. Agarwal A, et al. Physicians' knowledge, attitudes, and practices regarding fibromyalgia: A systematic review and meta-analysis of cross-sectional studies. Medicine (Baltimore). 2024;103:e39109. PMID 39093781.
  6. Hyder Zaidi SM, et al. Survey of knowledge and attitude towards fibromyalgia among physicians in Karachi, Pakistan. Br J Pain. 2022;16:593-600. PMID 36452123.
  7. Acuña Ortiz FE, et al. Knowledge on fibromyalgia among general practitioners, from Chiclayo-Peru, 2016. Reumatol Clin. 2017;13:326-330. PMID 27742549.
  8. Alatawi SS, et al. Knowledge, Attitude, and Practice Regarding Fibromyalgia Among Primary Care Physicians in Tabuk, Saudi Arabia. Cureus. 2023;15:e35097. PMID 36945290.
  9. Ghio L, et al. Health personnel perception about central sensitivity syndrome-fibromyalgia patients. Reumatol Clin (Engl Ed). 2024;20:73-79. PMID 38342740.
  10. Roitenberg N, Shoshana A. Physiotherapists' accounts of fibromyalgia: role-uncertainty and professional shortcomings. Disabil Rehabil. 2021;43:545-552 (epub 2019). PMID 31257947.
  11. Carulli A, et al. Perceptions of Fibromyalgia Across Career Stages: Survey Results From Internal Medicine Physicians and Medical Students. Musculoskeletal Care. 2026;24:e70253. PMID 42547310.
  12. Bidari A, et al. Challenges in fibromyalgia diagnosis: from meaning of symptoms to fibromyalgia labeling. Korean J Pain. 2018;31:147-154. PMID 30013729.
  13. Wolfe F, Walitt B. Culture, science and the changing nature of fibromyalgia. Nat Rev Rheumatol. 2013;9:751-5. PMID 23820862.
  14. Harim J, et al. [Care pathway to diagnosis in fibromyalgia and inflammatory rheumatic diseases: … comparative mixed-methods study]. Rev Med Interne. 2025;47:13-19. PMID 41033855.
  15. Quintner J. Why Are Women with Fibromyalgia so Stigmatized? Pain Med. 2020;21:882-888. PMID 31986200.

Online communities and platform-content quality:

  1. Berard AA, Smith AP. Post Your Journey: Instagram as a Support Community for People With Fibromyalgia. Qual Health Res. 2019;29:237-247. PMID 30066603.
  2. Merolli M, et al. Patient-reported outcomes and therapeutic affordances of social media: … global online survey of people with chronic pain. J Med Internet Res. 2015;17:e20. PMID 25616273.
  3. Ozsoy-Unubol T, Alanbay-Yagci E. YouTube as a source of information on fibromyalgia. Int J Rheum Dis. 2021;24:197-202. PMID 33355406.
  4. Macedo CC, et al. Fibromyalgia in social media: content and quality of the information analysis of videos on the YouTube platform. Inform Health Soc Care. 2022;47:305-316. PMID 34748454.
  5. Canatan AN. Assessing the Quality and Reliability of Videos Related to Fibromyalgia on TikTok. Cureus. 2024;16:e64704. PMID 39156279.
  6. Valades T, et al. Exploring Pain on Social Media: Observational Study on Perceptions and Discussions of Chronic Pain Conditions. JMIR Infodemiology. 2025;5:e67473. PMID 40956980.
  7. Prikhodkina M, Melnikov S. Factors that influence medication adherence in women with fibromyalgia: A path analysis. J Clin Nurs. 2024;33:3943-3953. PMID 38284436 — recruited via FM Facebook groups.
  8. Emergui G, et al. Expectations, conditioning, and the placebo effect… in fibromyalgia patients and healthy controls. J Psychosom Res. 2025;195:112207. PMID 40614451.

Coverage limits (honest accounting)

  • Videos were not played. All §(c) entries rest on search-listing metadata only; channel attributions marked "per listing" are unconfirmed. No transcripts or comment threads were retrieved.
  • Closed communities were not accessed. UK Fibromyalgia's private Facebook group, FMA UK's WhatsApp channel, Arthritis NZ's Facebook group, and all Facebook-only organizations (SAAFF South Africa, Fibromyalgia Support Group – India) are noted from public references only.
  • Fetch failures constrained regional and story coverage: CBC Radio family-disbelief feature (403), News24 South Africa feature (403), Arthritis Ireland FM page (403), NFMCPA (403), FibroIreland and Dutch F.E.S. (TLS errors), supportfibromyalgia.org legacy site (failed), FCSA's own site (script-only). Patient voice from Africa and South Asia is essentially absent from this layer as a result — a coverage gap, not an absence of patients.
  • Language bias. Searches were conducted in English (plus incidental Spanish/German/Scandinavian org-page content); the large Spanish-, Portuguese-, and Turkish-language FM communities are represented only through published studies.
  • PubMed metadata dates for some 2025–2026 items reflect e-pub records retrieved this session; volume/page details for the newest items may change at final publication.
  • No individual-story hub equivalent to TAA's charity story pages was fetched — the NFA's "Not Forgotten" video series and FMA UK newsletter stories were noted from homepage descriptions, not read story-by-story. Future sessions should fetch a story-hub page directly and summarize in aggregate.