Patient-voice layer — method and ethics¶
This layer synthesizes public, aggregate evidence about living with neuropathic pain. It is not a collection of identifiable stories.
Method¶
- Prefer peer-reviewed qualitative studies and publicly accessible organization materials.
- Separate thematic presence from prevalence.
- Require at least two sources per cross-condition theme.
- Paraphrase; any quotation must be ≤15 words and attributed.
- Record geography, language and selection limits.
Ethics¶
- Public sources only; no private groups or direct messages.
- No names or identifying details of private individuals.
- Themes are aggregated and potentially distressing material is not sensationalized.
- Organization listing does not imply endorsement.