Patient and advocacy organizations¶
Websites below were rechecked live on 2026-10-21. EPODIN, Pain UK and the Inflammatory Neuropathy Support Group of Victoria returned HTTP 200 and carry that date; the Victoria site, which timed out on 2026-09-30, resolved this time. The Foundation for Peripheral Neuropathy and Trigeminal Neuralgia Association UK returned HTTP 403 and the Peripheral Neuropathy Support Group returned HTTP 500 to automated requests, so they keep their 2026-09-30 dates; these are access-method failures, not evidence of inactivity. Listing records scope and does not imply endorsement.
| Organization | Region | Scope | Verified URL | Accessed |
|---|---|---|---|---|
| Foundation for Peripheral Neuropathy | United States/international | Peripheral-neuropathy education, support groups, registry and research | https://www.foundationforpn.org/ | 2026-09-30 |
| EPODIN | Europe | European umbrella for dysimmune and inflammatory neuropathy patient groups | https://www.epodin.org/ | 2026-10-21 |
| Trigeminal Neuralgia Association UK | United Kingdom | Patient-led support, helpline, education and advocacy for TN/facial pain | https://www.tna.org.uk/what-we-do-tna/ | 2026-09-30 |
| Peripheral Neuropathy Support Group Inc | Western Australia | Local meetings, support and information | https://pnsg.org.au/ | 2026-09-30 |
| Inflammatory Neuropathy Support Group of Victoria | Australia | Support for GBS, CIDP and related inflammatory neuropathies | https://www.ingroup.org.au/ | 2026-10-21 |
| Pain UK | United Kingdom | Alliance of charities representing people living with pain | https://painuk.org/ | 2026-10-21 |
Coverage notes¶
- Most verified sites are English-language and peripheral-neuropathy focused.
- Africa, Asia, Latin America and central-neuropathic-pain-specific organizations remain underrepresented.
- Healthdirect Australia was verified as a public information source but is not listed as a patient organization.