Patient and advocacy organizations¶
Websites below were rechecked live on 2026-08-30. Listing records scope and does not imply endorsement.
| Organization | Region | Scope | Verified URL | Accessed |
|---|---|---|---|---|
| Foundation for Peripheral Neuropathy | United States/international | Peripheral-neuropathy education, support groups, registry and research | https://www.foundationforpn.org/ | 2026-08-30 |
| EPODIN | Europe | European umbrella for dysimmune and inflammatory neuropathy patient groups | https://www.epodin.org/ | 2026-08-30 |
| Trigeminal Neuralgia Association UK | United Kingdom | Patient-led support, helpline, education and advocacy for TN/facial pain | https://www.tna.org.uk/what-we-do-tna/ | 2026-08-30 |
| Peripheral Neuropathy Support Group Inc | Western Australia | Local meetings, support and information | https://pnsg.org.au/ | 2026-08-30 |
| Inflammatory Neuropathy Support Group of Victoria | Australia | Support for GBS, CIDP and related inflammatory neuropathies | https://www.ingroup.org.au/ | 2026-08-30 |
| Pain UK | United Kingdom | Alliance of charities representing people living with pain | https://painuk.org/ | 2026-08-30 |
Coverage notes¶
- Most verified sites are English-language and peripheral-neuropathy focused.
- Africa, Asia, Latin America and central-neuropathic-pain-specific organizations remain underrepresented.
- Healthdirect Australia was verified as a public information source but is not listed as a patient organization.