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Patient-voice sources

Published research

  • Tang EYH, et al. Post-stroke memory deficits and barriers to seeking help. PMID 30452613 — qualitative patient/carer views; supports recognition and pathway themes.
  • Tang EYH, et al. Impact of memory problems post-stroke on patients and family carers. PMID 32637417 — qualitative study; supports everyday impact.
  • McMahon D, et al. Acceptability of post-stroke cognitive testing. PMID 38226361 — qualitative acceptability study.
  • Macdonald M, et al. Spousal/partner caregiver experiences in community dementia. PMID 32813338 — qualitative systematic review; general dementia, not vascular-specific.
  • Lillekroken D, et al. Minority-ethnic family caregiving in dementia. PMID 34786789 — qualitative systematic review.
  • Nguyen TA, et al. Dementia experiences in Vietnam and diaspora. PMID 35549573 — cultural qualitative synthesis.
  • Johnston K, et al. Understandings of dementia in LMIC and Indigenous peoples. PMID 31074290 — qualitative meta-synthesis.
  • Battle CE, et al. Cholinesterase inhibitors for VCI. PMID 33704781 — efficacy source used only to contrast scale and functional outcomes.
  • Swartz RH, et al. Canadian VCI recommendations. PMID 39822128 — care-pathway source.

Public organization sources

  • Alzheimer's Disease International — homepage, https://www.alzint.org/, accessed 2026-08-31 (HTTP 200).
  • CureCADASIL — homepage, https://curecadasil.org/, accessed 2026-08-31 (HTTP 200).
  • The CAA Alliance — homepage, https://thecaa.org/, accessed 2026-08-31 (HTTP 200).
  • Heart & Stroke Canada — homepage, https://www.heartandstroke.ca/, accessed 2026-08-31 (HTTP 200).
  • Alzheimer's Society (UK) — homepage, https://www.alzheimers.org.uk/, accessed 2026-08-31 (HTTP 200).
  • Alzheimer's Association — homepage, https://www.alz.org/, accessed 2026-08-31 (HTTP 200, audit re-fetch).
  • American Stroke Association — homepage, https://www.stroke.org/, accessed 2026-08-31 (HTTP 200, audit re-fetch).

Coverage limits

No private groups, forums, social-media comments, or logged-in communities were accessed. Public organization homepages verify current web presence, not quality, representativeness, or service availability. The Stroke Association UK returned HTTP 403 and is quarantined in organizations.md rather than used as evidence.