Patient and advocacy organizations

Sites were fetched on 2026-08-31 during the original build and re-fetched on 2026-08-31 during independent audit. A successful fetch verifies web presence only. The original five HTTP 200 entries remained 200; two additional US organizations resolved 200 on re-fetch. Stroke Association UK remained HTTP 403.

Organization	Region/scope	Relevance	URL	Fetch
Alzheimer's Disease International	global	dementia federation and advocacy	https://www.alzint.org/	200
Alzheimer's Society	UK	dementia information/support including vascular dementia	https://www.alzheimers.org.uk/	200
Heart & Stroke Canada	Canada	stroke prevention, recovery, caregiver information	https://www.heartandstroke.ca/	200
CureCADASIL	international/US-based	CADASIL research and family community	https://curecadasil.org/	200
The CAA Alliance	international/US-based	cerebral amyloid angiopathy education and research	https://thecaa.org/	200
Alzheimer's Association	US/international	dementia advocacy; vascular dementia is within the broader dementia portfolio	https://www.alz.org/	200 (re-fetched 2026-08-31)
American Stroke Association	US	stroke prevention, recovery, and caregiver information	https://www.stroke.org/	200 (re-fetched 2026-08-31)

Quarantined fetches

Organization/site	URL	Result	Use
Stroke Association	https://www.stroke.org.uk/	HTTP 403	presence not used as a content source in this build

Gaps

Stable, directly fetched VCI-specific organizations in Africa, Latin America, South Asia, East Asia, and the Middle East were not identified in this limited English-language pass. Absence from this table does not imply absence of organizations or communities.