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Annotated patient-voice sources

Peer-reviewed

  • Whittemore R, et al. Parent mixed-studies review; broad family themes, heterogeneous methods. PMID 22581804.
  • Fisher L, et al. Longitudinal adult diabetes-distress prevalence/incidence; clinic-based. PMID 27118163.
  • Zhang Y, et al. Fear-of-hypoglycemia systematic review across diabetes types; measurement heterogeneity. PMID 33091198.
  • Embick R, et al. T1D stigma systematic review; supports concealment and management-burden themes. PMID 38361327.
  • Lakshman R, et al. Fully closed-loop lived-experience qualitative study; technology-selected sample. PMID 38426909.
  • Canha D, et al. AID distress meta-analysis for users/caregivers; publication and survivor bias remain. PMID 39726162.
  • Pulungan AB, et al. Global descriptive pediatric-care availability study; country reporting varies. PMID 37362165.
  • Agarwal S, et al. Young-adult racial-ethnic technology disparities; observational. PMID 33155826.

Public organization pages

  • Diabetes UK — homepage and service/advocacy navigation. https://www.diabetes.org.uk/, accessed 2026-08-30.
  • T1International — insulin-access advocacy and grassroots network. https://www.t1international.com/, accessed 2026-08-30.
  • American Diabetes Association — research, education and advocacy portal. https://diabetes.org/, accessed 2026-08-30.
  • Diabetes Canada — research, education, advocacy and support portal. https://www.diabetes.ca/, accessed 2026-08-30.
  • Breakthrough T1D — T1D research, policy advocacy, information and community support. https://www.breakthrought1d.org/, accessed 2026-08-30.
  • Life for a Child — insulin, supplies, education and health-system support in under-resourced countries. https://lifeforachild.org/, accessed 2026-08-30.

Coverage limits

English-language, digitally accessible, research-connected, high-income experiences are overrepresented. People without specialist care, stable insulin access, internet access, or advocacy affiliation are less visible. Organization webpages describe missions and services, not frequencies of patient experience.