Annotated patient-voice sources¶
Last updated: 2026-08-30
Peer-reviewed qualitative and experience sources¶
| Source | Contribution | Limitation |
|---|---|---|
| Matheson et al. Adult ADHD patient experiences. PMID 23692803 | English adult impairment, services and management | Health-system specific |
| Watters et al. Impact of ADHD in adulthood. PMID 30124180 | Cross-domain adult lived impact | Qualitative transferability, not prevalence |
| Lefler et al. ADHD in college. PMID 26825556 | Academic and transition experience | Postsecondary sample |
| Schrevel et al. Adult experiences and needs. PMID 25559559 | Identity, needs and adaptation | Small exploratory sample |
| Oscarsson et al. Stress and work-related mental illness. PMID 36451126 | Work and stress intersection | Working-adult selection |
| Craddock 2024. Gendered implications of combined autism/ADHD diagnosis. PMID 39025117 | Gender and dual diagnosis | Combined-diagnosis sample |
| Babinski 2025. Adult diagnosis in women. PMID 39588653 | Mixed-method recognition and diagnosis | Female adult sample |
| Gudka 2024. Primary care for young people. PMID 38316468 | Multi-perspective service pathway | UK context |
| Reeves 2025. Adult medication experience meta-ethnography. PMID 40665716 | Synthesizes medication meaning, benefit and burden | Depends on included qualitative studies |
| McGill 2026. Adult diagnosis lived-experience review. PMID 42216788 | Diagnostic experience synthesis | Very recent; audit should inspect full inclusion set |
Reviews of stigma, knowledge, access and services¶
| Source | Contribution | Limitation |
|---|---|---|
| Bisset et al. Community attitudes. PMID 33769111 | Broader public attitudes | Measures and countries vary |
| Krishnamoorthy et al. Adult ADHD stigma. PMID 42137527 | Types and implications of stigma | Very recent evidence base |
| French et al. Primary-care barriers/facilitators. PMID 30552584 | Gatekeeper and pathway factors | Mixed methods and systems |
| Golson et al. ADHD knowledge measures. PMID 36806736 | Measurement quality | Knowledge does not equal behavior |
| Morgan et al. Racial/ethnic diagnostic disparities. PMID 23796743 | Longitudinal identification pattern | US education/health context |
| Yang et al. Treatment access/utilization disparities. PMID 35959536 | National treatment pattern | Observational service receipt |
| Moore et al. School nonpharmacologic reviews. PMID 25755258 | Accommodation/intervention context | Review-of-reviews heterogeneity |
| Anderson et al. Emerging-adult services. PMID 34939668 | Transition evidence across mental health | Not ADHD-only |
Public organization sources¶
- CHADD — mission, resources, support and advocacy: https://chadd.org/about/ (accessed 2026-08-30).
- ADDA — adult ADHD mission and virtual community: https://add.org/about-adda/ (accessed 2026-08-30).
- ADHD Europe — European umbrella advocacy: https://adhdeurope.eu/about-us/ (accessed 2026-08-30).
- CADDAC — Canadian awareness, education and advocacy: https://caddac.ca/about/ (accessed 2026-08-30).
- ADHD Ireland — current services/events and charity information: https://adhdireland.ie/ (accessed 2026-08-30).
- ADHD Australia — national advocacy mission: https://www.adhdaustralia.org.au/about-adhda/ (accessed 2026-08-30).
- APDA Peru — family/professional organization, information, education and advocacy: https://www.deficitdeatencionperu.com/quienes-somos/ (accessed 2026-08-30).
- Taiwan ADHD Association — consultation, family/teacher support, education and advocacy: https://www.adhd.org.tw/ (accessed 2026-08-30).
- ADHD Foundation UK — historical organization; trustees' closure statement says it ceased trading on 2025-08-30: https://adhdfoundation.org.uk/news/adhd-foundation-closure (accessed 2026-08-30).
Coverage limits¶
The indexed qualitative literature is disproportionately English-language, high-income-country and adult. Adding official organization sources from Peru and Taiwan improves geographic coverage but does not supply representative lived-experience research from Latin America or Asia. People unable to obtain diagnosis, without internet access, in institutional settings, with intellectual disability, or outside specialist services are less visible. Organization websites describe organizational missions and available public materials; they do not independently establish treatment efficacy, prevalence or representativeness. Social-media content was included only through peer-reviewed aggregate study, not by collecting identifiable posts.